Jennifer Johnston

Jennifer Johnston's Fundraiser

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$500 towards $1,000

When our son Charlie was born, we were filled with love and excitement, but we also faced the unexpected—his Down Syndrome diagnosis. In those early days, we felt a mix of emotions: joy for our beautiful baby boy, uncertainty about the future, and a deep desire to give him the best life possible.

Amid the whirlwind of medical terms, appointments, and new realities, we found something even more powerful—community. That’s when we discovered the Down Syndrome Diagnosis Network (DSDN), an organization dedicated to supporting families like ours from day one. Through DSDN, we connected with other parents who had walked this path before us, found invaluable resources, and, most importantly, realized that we were never alone.
At 4, Charlie is thriving, and we want to give back to the organization that continues to help and support us. DSDN provides critical support, advocacy, and education for families navigating a Down syndrome diagnosis. Their work ensures that every child, like Charlie, is welcomed with love and that every family has the resources they need to embrace their journey with confidence.
We invite you to join us in supporting DSDN so they can continue to empower families, celebrate every child’s potential, and create a world where all individuals with Down syndrome are valued. Every donation makes a difference—because every child deserves a strong start.

Donate today and help us honor Charlie and so many others on this incredible journey. #CharlieStrong #DSDNsupport

Just a small donation will go a long way to helping me meet my goal for Down Syndrome Diagnosis Network

Down Syndrome Diagnosis Network (DSDN) is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3, while fostering the opportunity for lifelong connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time, and that families can quickly find meaningful connections.

We currently reach about 23% of those with a new diagnosis annually and support over 22,000 families that have a child with Down syndrome, with an emphasis on diagnosis and early childhood. We are a recommended resource by the American Academy of Pediatrics.

Your donation enables DSDN to:

  • Support and connect families online
  • Fuel our Rockin' Family Fund through:
    • Pregnancy Gifts
    • Welcome Gifts
    • Memorials
    • Care Gift Cards
    • Scholarships
    • Support for local organizations
  • Provide opportunities for parents to connect, be inspired and recharge at our annual Rockin' Mom™ and Dad retreats
  • Talk with with medical providers about the diagnosis conversation across the US at national and regional conferences
  • Work with OB/GYN residents and medical providers on how to deliver an unexpected diagnosis
  • Mail print materials free of charge to local organization, medical providers and families
  • Reach thousands of new families joining the Ds community each year
  • Connect rockin' families to local organizations

Check out our most recent Annual Report for more details!

Contributions to Down Syndrome Diagnosis Network tax-deductible to the extent permitted by law.

You can also mail your donations (and help us save on payment processing fees) to:

Down Syndrome Diagnosis Network
PO Box 140
Stillwater, MN 55082