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Beverli Austin's Fundraiser

Donate today and together we can make a difference for families of children with Down syndrome.
Join me and help make a difference!
Join me in supporting real change. Let’s support good in the world and make a difference. Help us fundraise for Down Syndrome Diagnosis Network.
Just a small donation will go a long way to helping me meet my goal for Down Syndrome Diagnosis Network.
TyVel was born at 27 weeks along with his twin sister TyAnn. He was Diagnosed with tetrology of fallot and bloodwork indicated trisomy 21 while pregnant. While in the NICU, at three months old he was diagnosed with Hirschsprung’s disease and received a colostomy bag. He came home on January 3 at 4 months old weighing only six pounds. At 7 months he had heart surgery unexpectedly and had to be resuscitated after they gave him gas anesthesia. In his short life he has been diagnosed with obstructive sleep apnea, silent aspiration, hypothyroidism, Chronic Lung Disease, Eczema, Hypermobile colon and constipation, and silent reflux. He has had a gtube and ostomy bag, both surgically removed in 2022.
TyVel did not sit up on his own until about 19/20 months old and walked on his own around 30-32 months old. He has had many hospital stays, procedures, sleep studies, swallow studies and 4 major surgeries.
TyVel continues in physical therapy, speech therapy, occupational therapy, feeding therapy and currently receives specialized education in school. He is saying more words and mimicking more, running around and learning to jump. He knows his colors and loves to count and sing with Mickey Mouse, Elmo, Blues Clues, Herman the Worm and Ms. Rachel. God has truly blessed TyVel throughout his life and continues to each day!
DSDN is a registered 501(c)(3) non-profit operated by two paid staff members and over 150 volunteers and funded by generous donations from supporters like you.
Check out our most recent Annual Report for more specifics on how we allocate funds.
YOUR DONATION ENABLES DSDN TO:
- Support and connect thousands of families online through our own secure DSDN App at no cost to users
- Fuel our Rockin' Family Fundthrough:
- Pregnancy Gifts
- Welcome Gifts
- Memorials
- Care Gift Cards
- Scholarships
- Adoption Grants
- Gifts to local organizations
- Provide opportunities for parents to connect, be inspired, and recharge at our annual Rockin' Mom™ and Rockin’ Dad™ retreats
- Talk with with medical providers about the diagnosis conversation across the US at national and regional conferences
- Work with OB/GYN residents and medical providers on how to deliver an unexpected diagnosis
- Mail print materials free of charge to local organization, medical providers and families
- Reach thousands of new families joining the Ds community each year
- Connect rockin' families to local organizations