Ali McGorry Hooper

Ali McGorry Hooper's Fundraiser

Contribute today in making a positive difference for families who receive a Down Syndrome Diagnosis. image

Contribute today in making a positive difference for families who receive a Down Syndrome Diagnosis.

Let's support new families together!

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$42 towards $1,000

In 2023 I took action in supporting DSDN because of the positive influence it had on me having both a surprise pregnancy and then soon after a positive NIPT result for Down Syndrome. There were so many unknowns and the network of pregnant women and experienced parents assured me my life would be filled with JOY. As Beau grew, the network helped to inform me of opportunities for him, best therapy practices and how to provide continuity of care when moving from Louisiana to California. On top of this, I had not planned to attend the retreat but when the donations helped to support that, I LEARNED SO MUCH from the medical panels, the mom panels and how to take respite a little more seriously as a stressed-out / always ON caregiver. I also heard from volunteer organizations across the country and I fully plan on being involved with Jack's Basket in the New Year as well as NDSS and their advocacy in the Public Policy sector. I'm so thankful to have found DSDN as the resources from this Network are invaluable.

This year, my goal is lofty at $1000 but I have a few months to get there! Please consider helping me to reach more families, advocate, and learn as much as I can at the Retreat in Georgia this year!

DSDN is a registered 501(c)(3) non-profit operated by two paid staff members and over 150 volunteers and funded by generous donations from supporters like you.

Check out our most recent Annual Report for more specifics on how we allocate funds.

YOUR DONATION ENABLES DSDN TO:

  • Support and connect thousands of families online through our own secure DSDN App at no cost to users
  • Fuel our Rockin' Family Fundthrough:
    • Pregnancy Gifts
    • Welcome Gifts
    • Memorials
    • Care Gift Cards
    • Scholarships
    • Adoption Grants
    • Gifts to local organizations
  • Provide opportunities for parents to connect, be inspired, and recharge at our annual Rockin' Mom™ and Rockin’ Dad™ retreats
  • Talk with with medical providers about the diagnosis conversation across the US at national and regional conferences
  • Work with OB/GYN residents and medical providers on how to deliver an unexpected diagnosis
  • Mail print materials free of charge to local organization, medical providers and families
  • Reach thousands of new families joining the Ds community each year
  • Connect rockin' families to local organizations